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Real members of MyVitiligoTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Do You Handle Unsolicited Advice Or Comments About Vitiligo?

A MyVitiligoTeam Member asked a question 💭
San Francisco, CA
October 25, 2022
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A MyVitiligoTeam Member

Most people haven't done a lot of me. But I had one guy tell me to use Head and Shoulders. I told him it wasn't the same thing and he was insistent. I finally said "dude I have had vitiligo for over 40 years, pretty sure I know what I'm talking about!!!" 🤣🤣🤣

October 31, 2022
A MyVitiligoTeam Member

I don’t mind but I do hate how people love to stare at me an my spots they are all over . Sometimes I just want say if you keep looking at me my white spots might jump off of me onto you lol

October 26, 2022
A MyVitiligoTeam Member

I’ve had Vitligo so long it doesn’t bother me as much now as it did before l retired. Age gives you a don’t care attitude think of me what you want, l am a child of God and l know l am beautiful. Got to think positive. There is no cure. Something might slow it down but it doesn’t take it away.

October 25, 2022
A MyVitiligoTeam Member

I actually am still adjusting to my spots myself. I am very comfortable around family and friends, but when I do notice a stare, I just try smile and keep it moving. It has been an adjustment, but I am getting better.

October 25, 2022
A MyVitiligoTeam Member

I give the person my card and tell them about Vitiligo. They are able to look at my website and Instagram. I travel to festivals and set up a Vitiligo Awareness booth. I am now living the RV life so I am able to meet so many people. 💜 I am finding out that so many more people have Vitiligo now. I think that the stress of the past couple of years has definitely been a reason for this.

October 25, 2022

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