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Real members of MyVitiligoTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Have Any Of You Noticed A Vicious Cycle Of Anxiety/depression And New Or Worsening Patches?

By A MyVitiligoTeam Member 10 answers

Which Vitiligo Symptom Surprised You The Most?

By A MyVitiligoTeam Member 17 answers

Are You Frustrated With Finding Effective Treatments For Vitiligo?

By A MyVitiligoTeam Member 28 answers

How Do Beverages With Caffeine Affect Your Vitiligo?

By A MyVitiligoTeam Member 20 answers
536 questions

I Have Vitiligo Around My Mouth And In The Last Couple Weeks It’s Been Very Pink/ Red Why Is It Pink And What Can I Do To Help It?

A MyVitiligoTeam Member asked a question 💭
Asheville, NC

It feels like it’s spreading a little and hasn’t really for a year, and I use sunscreen so I don’t think it’s sunburn.

A MyVitiligoTeam Member

Mine also first affected the lips people thought is HIV, just avoid stress and stop using lip sticks

February 28

Is Anyone Having Positive Effects With Using Any Kind Of Cream? That Fades Out The Spots?

A MyVitiligoTeam Member asked a question 💭
Fort Worth, TX

I realize it takes from 6-7 months to see any changes, But I need realistic results that work. And not cause more damage to my skin. I would appreciate your feedback.
Thank You...have a Blessed Day👍🏾😁

A MyVitiligoTeam Member

Rhonda hello. My occurrences happened a decade ago. I still see minor outbreaks. What helped me maybe different for you.
Hang in there.

December 27, 2023

Did Anyone Tried Light Therapy And For How Long

A MyVitiligoTeam Member asked a question 💭
Ottawa, ON
A MyVitiligoTeam Member

Yes they are expensive my insurance covers 90% once I meet my deductible.

February 26

Vitiligo Cause Blindness In A Year?

A MyVitiligoTeam Member asked a question 💭
Kettle Falls, WA

My 14 year old daughter has vitiligo and was diagnosed when she was 5 after years of me fighting drs to take a spot they claimed to be a scar as something else. She has had declining vision over the years but last year she did get stronger glasses and this year new dr accused me of neglecting her eye health and stated that the damage to the left eye is so severe that she will lose all vision within the next year maybe two. The dr stated that she should have had eye patch to strengthen her eye… read more

A MyVitiligoTeam Member

I have had Vitiligo for a very long time and have done a lot of studying of Vit. I have been going to doctors for a long time that are experts in Vit. I can tell you from experience that some… read more

March 3

Why Should We Seek For Medicine, Do We Think Of It As Our Problem? Is That Our Problem To Be Seem Like Odd For Others?

A MyVitiligoTeam Member asked a question 💭
Indian, AK
A MyVitiligoTeam Member

I try not to seek doctors for my vitiligo I just live with it . I figure people don’t have to look at me but if they do one day I might say if you are not careful my spots will jump onto you for being… read more

January 6

I Just Started The Xtract Treatment Two Weeks Ago. Has Anyone Taken This Treatment And What Have Been Your Experience With This Treatment?

A MyVitiligoTeam Member asked a question 💭
MO - Florissant
A MyVitiligoTeam Member

What is involved in this treatment?

October 11, 2023

I've Been Treating With Opzelura For A Couple Of Months. No Visible Results Yet But I Am Not Expecting Any Overnight Transformation Either.

A MyVitiligoTeam Member asked a question 💭
Spring Hill, TN

If you have been using Opzelura, I would love to hear about your experience/results.

A MyVitiligoTeam Member

Just started on it

September 19

Had Anyone Use Ginkgo Biloba For Vitiligo Treatment?

A MyVitiligoTeam Member asked a question 💭
Bandung,West Java,Indonesia
A MyVitiligoTeam Member

now 60mg one time daily, because her doctor give her additional vit d, in the morning

August 12, 2023

Local Community

A MyVitiligoTeam Member asked a question 💭
El Paso, TX

Happy soon to be 4th of July to everyone.
Has anyone started a local in person community support group?
Feel lead to do so where people can come together to encourage one another in fellowship and share lifestyle remedies that may help us all live our healthiest and most positive life with our condition.

A MyVitiligoTeam Member

Thank you!!! Hahaha it sure is!!

Houston is kinda on the other side from me. But it’s ok. A zoom support group would be nice too 🥰

July 13, 2023

How Do I Treat Sunburn On My Vitiligo Patch?

A MyVitiligoTeam Member asked a question 💭
London, UK

I was taking part in a football tournament today. The weather was gloomy but over time the sun 🌞 showed up which is rare in the UK 🇬🇧.

I made the silly mistake of not putting on sun block.

Now both my arms which near enough covered in vitiligo has turned pinky redish.

Any suggestion what I can do.

I won't make the mistake of remembering to put on sunblock.

A MyVitiligoTeam Member

Aloe works for me. I would suggest growing an aloe plant. They grow inside well, dont like too much water. Great to soothe skin. Great in general even on non sunburned skin.

January 6
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