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Which Vitiligo Symptom Surprised You The Most?

MyVitiligoTeam asked a question 💭
San Francisco, CA
August 20, 2024
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A MyVitiligoTeam Member

I learned from my dermatologist that stress causes it to spread which was the case with me and it did spread fast!

August 29, 2024
A MyVitiligoTeam Member

For me it was how quickly it spread!

August 25, 2024
A MyVitiligoTeam Member

The itching. My doc explained that it can itch when it’s active. Mine itches the most when I’m overtired or stressed.

August 20, 2024
A MyVitiligoTeam Member

I have had vitiligo as far back as i can remember. Born with it. My life is hoing along completely fine then bam! Another uneducated rude human reacts to me like i have the plague. Mentally it is at times just disappointing! It is the sad reality that it can play such a huge role in out mental. At 63 their was few if not none to little treatment for it . So growing up. Covering it while in the sun with zinc sunscreen . Was the depth of treatment. I tried taking a pill to multiply a melanine which helped some but did not completely clear. After bout of pills. Told i had max’d out thst treatment with health risk. Now it is just there. On my face. I wax told once i needed to cover it. That my at time boyfriend was put off by it. Crushed. I told him what feirnd said. He spoke nothing. I ended up leaving him for a multitude of reasons. So i accept myself with hugr amounts of self love. Acceptance from others is wanted but not neccesary gor me to live a full life

October 8, 2024
A MyVitiligoTeam Member

My vitiligo symptom that surprised me the most is that mine is NOT like what most people and doctors say. Cuts and bruises don’t do anything, stress…nothing. Mine seems to do the exact opposite (or not at all), of what I’ve read…which has made me very annoyed. At least when I read something it helps me to understand what will most likely happen, but when most of that doesn’t pertain to me I’m totally stumped, annoyed and confused. I’ve gotten to a point that I just ignore is as much as possible. I have noticed two things that goes with the norm (per se), that is where I have clothing that rubs it has gotten lighter in (only) two areas. Hence my husband thinking I have a tan line…LOL!

September 11, 2024

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